Wednesday, 25 October 2017

Multiple Sclerosis getting worse

Strange how I used to be a strong hard working man but yesterday I could open a bag of crisps and had to ask my wife to open them!!
My Primary Progressive Multiple Sclerosis is getting worse. I have suffered for over thirty years, was diagnosed twenty five years and now after fighting it at every change I am admitting I am loosing the battle. A week ago we had a ceiling hoist fitted as transfer from wheelchair to bed has got to be precarious if not darn right dangerous. I am not safe standing anymore and actually admitting it has been hard. My wife is an absolute saint she works so hard to enable me to leads a life and deserves a medal. I haven't given up but it would be so easy to say sod it and just lay in bed 24/7

Monday, 11 September 2017

I got Stuck in my Through Floor Lift in Margate

I used to have a stairlift but the condition of my Multiple Sclerosis has made that unsafe for me to use as my Multiple Sclerosis got worse. So I now have a Pollock through floor lift. On Friday Morning I got stuck in it. No problem as it reset itself and I was able to continue the journey, just as well because I had the District Nurse here to change my catheter 😥I only delayed here by a few minutes but I needed to get it sorted. Call in the Lift engineer, he was fitting a Curved Stairlift in Bromley but said he would be with us ASAP. He arrived about four in the afternoon and we explained it had all started earlier in the day and had stopped three times, every time on the way up. We know the engineer Ryan as he had serviced both of our previous stairlifts. The first one had been an old second hand Stannah stairlift which we replaced with a new lift when we had the Bathroom converted to a wet room.
Ryan quickly diagnosed the fault and I was as happy as a dog with two tails. I did say that I was going to tell the blogging world about him and promote his new website KENTSTAIRLIFTS.COM as has was saying his new website was so new it wasn't getting found by the search engines. Those who have been reading my blogs will know I love getting websites higher in the search engine ratings. So getting Kent on the first search page was like a red rag to a bull to me.So Ryan when you read this clear the cache in your computer or phone and search and see where your website comes. Ryan lives in Dover and fits Stairlifts all over Kent Surrey South East London and East Sussex. So if you are reading this in Maidstone or Canterbury Seven Oaks or Dartford in fact anywhere in the South East Call 07908 038 494 and get your Stairlift or as in my case a Through Floor Lift emergency sorted. Dont forget to tell Ryan where you heard about him as I might get a free service nudge nudge.

Wednesday, 23 August 2017

You all know that I suffer from Multiple Sclerosis well my daughter Victoria has signed up to run the Royal Parks Half Marathon to raise money for Multiple Sclerosis. She has raised over four hundred pounds so far and has a JUST GIVING page click here to give her a financial contribution

Tuesday, 22 August 2017

Tuesday, 4 July 2017

Mental health services in crisis Magic Money Tree needed

I listened to radio four this evening as I waited for Heather to get fish n chips from Holly lane chippy. It was a program about the recent deaths of patients under care of the BUS mental health services. There were interviews with parents care givers and all manner of associated people. All had the same message. The service is broken, under funded and in chaos. I don't use the word chaos lightly, I mean it in it's full meaning of the word. Several different people from opposite ends of the country and I am saying North South East and West plus central England came to the same conclusion, the services had been promised more money more staff more beds, in short more of everything and nothing had materialized. Not ever over astounding periods of time.
One nurse had left recently because she was overwhelmed with her own inadequacies and her manager tried to say since her leaving many changes had taken place. In weeks that is most unlikely, she left because the system was broken but the manager in his best manager speak tried to gloss it over. Parent of youngsters with their whole lives ahead of them spoke of avoidable deaths. Bad communication failings to assess and the NHS releasing patients because they had no beds, and these patients went on to take their own lives. And this wasn't isolated instances it was widespread!
Both Cameron and May have give lip service to Mental health but if these deaths and abuses in care are to end the Government needs to stump up some serious funding. Money that is ring fenced for the mental health services, not cash that can be plundered to make up for underfunded services elsewhere in hospital. This has happened time and time again. Government s are masters at slite of hand when cash is concerned, they can announce new funding many times making any number sound greater than it actually is.
I heard a very good analogy yesterday, the person was offered a raise and a promotion for arguments sake a 1.50 when the next discussion came 1'50 became 100 and then the actual job was to pay 50 three slites of hand and the person who had been offered the promotion said no and said "smiles and kind words won't pay my shopping bills"
The Government work in the same way, they announce new money three times but only allocate one third of what people think is being offered.